Let’s Talk About Sickle Cell
- 9:00 pm
17 October 2019
University of Reading | FREE
Whiteknights Campus, Reading RG6 6UR
Sickle cell is one of the most common genetic conditions in the world and still one of the most misunderstood. It predominately affects those from BAME groups but is not restricted to this demographic.
Sufferers are continuously being questioned about the symptoms they experience, and the severity of the condition which has led to a lack of empathy received day to day with people that do not have it.
Battling a condition and the continuous questioning from loved ones, teachers and employers due to the lack of knowledge and misunderstandings around the condition is something that must change within our community.
So what is the solution?
In this lecture, Cianna’s Smile charity founder and mother to a child with Sickle Cell Hayley King will deliver an informative presentation on what Sickle Cell is and how ‘we’ can all help those suffering from it by becoming more aware and educated about the life challenges they face due to the condition.
Hayley will cover what Sickle Cell is, how it is inherited and the symptoms and complications it can cause and most importantly the social difficulties those with Sickle Cell face and the projects and services the charity offer to support those affected by Sickle cell including their siblings, parents/carers and friends.
Hayley King is a strong advocate for Sickle Cell and has continued to raise awareness since her daughter Cianna was diagnosed with it at 3 days old. Hayley felt there was a lack of empathy towards Cianna by members of the family, members of the public, education providers and healthcare professional and began on her mission to educate people about the condition through founding her charity Cianna’s Smile in July 2012 to debunk the myths and misconceptions of Sickle cell in the hope that it will help Cianna and others with Sickle Cell in the future.
Who is this event for?
This event is for anyone interested in learning more about Sickle Cell and the work Cianna’s Smile does to help those affected by Sickle Cell within our community.
The talk is the perfect opportunity for education providers, employers, HR representatives, family members and those who know someone affected by Sickle to help gain a better understanding of the condition and how it can affect individuals.
Doors open at 7:00 PM. Talk starts at 7.30 pm promptly
Q and A’s with guest panel 8:30 to 9:00 PM
All attendees will receive a free information pack (pdf) via email after the event.
Refreshments and snacks will be available on the night.
This is a FREE event, register here